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  • TITLE
  • CERTIFICATE
  • DECLARATION
  • ACKNOWLEDGEMENT
  • CONTENTS
  • LIST OF TABLES
  • LIST OF FIGURES
  • I. INTRODUCTION
  • UNDERSTANDLNG MUSCULAR DYSTROPHY
  • TYPES OF MUSCULAR DYSTROPHY
  • i) Duchenne Muscular dystrophy
  • ii) Becker dystrophy
  • iii) Limbgirdle syndrome
  • 1) Autosomal Recessive Muscular Dystrophy of Childhood
  • 2) Pelvifemoral type
  • 3) Scapulo Humeral Type
  • 4) Late Onset Autosomal Dominant Type
  • 5) Quadriceps Myopathy
  • DIAGNOSIS
  • TREATMENT TRIALS
  • PHYSICAL THERAPY
  • PREVENTION
  • II. REVIEW OF LITERATURE
  • STRESS FACTORS
  • 1. Stimulus - oriented approach to stress
  • 2. Response-oriented interpretation to stress
  • 3. The physiological approach to stress
  • 4. The psycho-dynamic approach to stress
  • 5. Socially oriented approach to stress
  • COPING STRATEGIES
  • SOCIAL SUPPORT
  • Social Support and Physical Disablity
  • REHABILITATION
  • III. RESEARCH METHODOGY
  • 1. BACKGROUND OF THE STUDY
  • SCOPE OF THE STUDY
  • FORMULATION OF THE PROBLEM
  • HYPOTHESES
  • Prinicipal Hypothesis - I
  • Principal Hypothesis - II
  • Principal Hypothesis - III
  • Principal hypothesis - IV
  • Principal hypothesis - V
  • Principal Hypothesis - VI
  • Principal Hypothesis - VII
  • SAMPLLNG
  • DESIGN
  • MATERIALS FOR DATA COLLECTION
  • INSTRUMENT TO STUDY THE BACKGROUND DETAILS
  • MEDICO-PSYCHOLOGICAL QUESTIONNAIRE (MPQ)
  • Introduction
  • Neurosis
  • Hysteria
  • Neurasthania
  • Anxiety
  • Reactive depression
  • Obsessive Compulsive Neurosis
  • Some past studies of neuroticisan
  • Administration
  • Norms
  • Scoring
  • Reliability
  • Validity
  • COPING STYLES (NCS)
  • PERCEIVED SOCIAL SUPPORT APPRISAL (SSA)
  • FAMILY ENVIRONMENT SCALE (FES)
  • 1. Cohesion
  • 2. Expressiveness
  • 3. Conflict
  • 4. Independence
  • 5. Achievement orientation
  • 6. Intellectual cultural orientation
  • 7. Active recreational orientation
  • 8. Moral religious emphasis
  • 9. Organisation
  • 10. Control
  • SUBJECTIVE WELL BEING INVENTORY (SWBI)
  • Subjective well-being positive affect
  • Expectation achievement congruence
  • Confidence in coping
  • Transcendence
  • Family group support
  • Social support
  • Primary group concern
  • Inadequate mental mastery
  • Perceived ill health
  • Deficiency in social contacts
  • General well being negative affect
  • SOCIAL FUNCTIONING SCALE (SFS)
  • ACTIVITIES OF DAILY LIVING (ADL)
  • Different Types of Scales
  • Check lists
  • Hierarchical scale
  • Summed Index
  • Berthel scale
  • SCALE TO ASSESS THE OPINION OF MUSCULAR DYSTROPHY PATIENTS REGARDING REHABILITATION (ORS)
  • IV. ANALYSIS AND DISCUSSION
  • I. PERSONAL BACKGROUND OF MUSCULAR DYSTROPHY PATIENTS
  • 1. Distribution of Dystrophy Patients based on Religion
  • 2. Distribution of Dystrophy Patients based on Community
  • 3. Distribution of Dystrophy Patients based on Sex
  • 4. Distribution of Dystrophy Patients based on Age
  • 5. Distribution of Dystrophy Patients based on Educational Status
  • 6. Distribution of Dystrophy Patients based on Occupational Status
  • 7. Distribution of Dystrophy Patients based on Family Income
  • 8. Number of Persons Employed in the Dystrophy patients Families
  • 9. Distribution of Dystrophy Patients based on Marital Status
  • 10. Distribution of Dystrophy Patients based on Family Type
  • 11. Distribution of Dystrophy Patients based on Family Size
  • 12. Incidence of Muscular Dystrophy among other Adults in the Family
  • II. COMPARISON OF THE PATIENTS ON THE BASIS OF INDEPENDENT VARIABLES INTERMS OF SCALES
  • 13. Mean Differences on Religion for the Scales in the Study
  • 14. Mean Differences on Community for the Scales in the Study
  • 15. Mean Differences on Male and Female patients for the Scales in the Study
  • 16. Mean Differences on Age Group for the Scales in the Study
  • 17. Mean Differences on Eucational Status for the Scales in the Stud,
  • 18. Mean Differences on Occupational Status for the Scales in the Study
  • 19. Mean Differences on Family Income for the Scales in the Study
  • 20. Mean Differences on Number of People Employed for the Scales in the Study
  • 21. Mean Differences on Marital Status for the Scales in the Study
  • 22. Mean Differences on Family Type for the Scales in the Study
  • 23. Mean Differences on Occupational Status for the Scales in the Study
  • 24. Mean Differences on the incidence of muscular dystrophy on other adults for the Scales in the Study
  • III. COMPARISON OF THE CRITERION GROUPS ON THE BASIS OF SCALES MEDICO-PSYCH0LOGICAL STATUS
  • 25. Mean Differences between three criterion groups on dimensions of Medico-Psy. Questionnaire (MPQ)
  • 1.Medico-Psychological Scores of the Respondents
  • 26. Mean Differences between three criterion groups on dimensions of total Number of Coping styles (NCS)
  • 2.Coping Styles of the Respondents
  • 27. Mean Differences between three criterion groups on dimensions of Social Support Appraisal
  • 3.Social Support Appraisal of the Respondents
  • 28. Mean Differences between three criterion groups on dimensions of Family Environment Scale
  • 4.Family Environment of the Respondents
  • 29. Mean Differences between three criterion groups on dimensions of Subjective Well-Being Inventory
  • 5.Subjective Well-Being of the Respondents
  • 30. Mean Differences between three criterion groups on dimensions of Social Functioning Scale
  • 6.Social Functioning of the Respondents
  • 31. Mean Differences between three criterion groups on dimensions of Activities of Daily Living Scale
  • 7.Activities of Daily Living of the Respondents
  • 32. Mean Differences between three criterion groups on dimensions of Opinion Regarding Rehabilitation Scale
  • 8.Opinion on, Rehabilitation of the Respondents
  • IV. INTER-CORRELATIONS AMONG SCALE VARIABLES IN TERMS OF THE THREE CRITERION GROUPS
  • 33. Inter Correlation Matrix on Different Factors of Duchenne Patients
  • 34. Inter Correlation Matrix on Different Factors of Becker Patients
  • 35. Inter Correlation Matrix on Different Factors of Limbgirdle Patients
  • 36. Inter Con-elation Matrix on Different Factors of for all Patients
  • V. MULTIPLE REGRESSION ANALYSIS
  • 37. Stepwise Multiple Regression Results for Medico-Psy. Questionnaire
  • 38. Stepwise Multiple Regression Results for number of Coping Styles
  • 39. Stepwise Multiple Regression Results for Social Support Appraisal
  • 40. Stepwise Multiple Regression Results for Subjective Well-Being Inventory
  • 41. Stepwise Multiple Regression Results for Social Functioning Scale
  • 42. Stepwise Multiple Regression Results for Activities of Daily Living
  • 43. Stepwise Multiple Regression Results for Opinion Regarding Rehabilitation Scale
  • VI. RESULTS BASED ON DISCRIMINANT ANALYSIS
  • 44. Discriminant Analysis for three Criterion Groups
  • 45. Fisher Linear Discriminant Function for three Criterion Groups
  • 46. Discriminant Analysis - Final Classification Results
  • VII. RESULTS BASED ON FACTOR ANALYSIS
  • 47. Factor Analysis results for Duchenne Patients
  • 48. Factor Analysis results for Becker Patients
  • 49. Factor Analysis results for Limbgirdle Patients
  • 50. Factor Analysis results for all Patients
  • V. SUMMARY OF FINDINGS, SUGGESTIONS AND AREAS FOR FURTHER RESEARCH
  • FINDINGS BASED ON SCALES
  • I. Medico-Psychological status
  • II. Number of coping styles
  • III. Social Support Appraisal
  • IV. Family Environment
  • V. Subjective Well-being
  • VI. Social functioning
  • VII. Activities of Daily Living
  • VIII. Opinion Regarding Rehabilitation
  • SUGGESTIONS
  • Individual Level
  • Family Level
  • Community Level
  • Areas for further research
  • VI. IMPLICATIONS OF THE STUDY - A MODEL FOR SOCIAL WORK INTERVENTION
  • To the Social Work Professional
  • To Mental Health professionals
  • To General Health Professionals
  • To lay men
  • A MODEL FOR SOCIAL WORK INTERENTION
  • Need for Intervention
  • Systems Approach
  • Client System
  • Change Agent System
  • Target System
  • Resource System
  • Intervention Methodology
  • Intervention Outcomes
  • BIBLIOGRAPHY
  • APPENDICES
  • APPENDIX A: Demographic Details
  • APPENDIX B: Medico - Psychological Questionnaire
  • APPENDIX C: Coping Pattern Inventory
  • APPENDIX D: Perceived Social Support Appraisal
  • APPENDIX E: Family Environment Scale
  • APPENDIX F: Subjective Well-Being Inventory
  • APPENDIX G: Social Functioning Scale
  • APPENDIX H: Activities of Daily Living Scale
  • APPENDIX I: Opinion Regarding Rehabilitation Scale